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- CAP Focuses on the Future of Sickle Cell Disease Care for Patients
As a member of the Sickle Cell Disease Coalition (SCDC), the CAP has been discussing the diagnosis and treatment of the disease with various stakeholders during National Sickle Cell Awareness Month for September. The coalition was formed to amplify the voice of the sickle cell disease stakeholder community to improve outcomes for individuals with the disease. Its membership includes public health, research, and provider organizations, patient groups, faith-based organizations, federal agencies, industry representatives, and foundations.
Innovative approaches in managing this disease have improved diagnosis and supportive care over the last few decades, but many patients still must overcome severe barriers to care. At the recent 2023 Sickle Cell Disease Coalition Annual Summit on September 8, the CAP pledged to support the mission of the coalition by assisting in the following priority areas:
- Helping to increase blood donor diversity with ideas for outreach opportunities.
- Providing recommendations on a Sickle Cell Disease Data Registry.
- Helping find ways to increase workforce development efforts that focus on training more Advanced Practice Providers in SCD to make up for shortage of hematologists.
The CAP recently interviewed Dr. Glenn E. Ramsay of Northwestern medicine about the importance sickle cell disease awareness and the fight to ensure adequate treatment and care for all those impacted with the condition. Listen to the podcast here!