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Cancer Data Champions

Mar 21, 2024 2:00 PM - 3:00 PM CT

To support our collective effort to enhance public health for cancer patients—from clinical applications to supporting research to building a more robust health system in general—the College of American Pathologists (CAP) is sponsoring a series of Cancer Data Champions webinars.

  • Do you lead efforts in your institution—and across health care—to allow for increased access to and aggregation of pathology data?
  • Would you like to better leverage pathology data in the pursuit of improved clinical care?
  • Are better patient outcomes and more robust research initiatives on your to-do list?

If you answered "yes" to any of these questions, then there's a good chance you’re already on your way to becoming a Cancer Data Champion.

This series will examine both visionary topics for the use of data and real-world, hands-on opportunities to utilize the current data stores. Please join us as we explore the breadth and depth of pathology data that is readily available to support these initiatives.

Webinar Schedule

  • Pathology Report Data Life Cycle: How to access cancer surveillance data

    November 16, 2023
    1:00 PM CT

    Many single-institution studies and clinical trials are not representative of the underlying population, and case series are often underpowered for addressing many important research questions. Population-scale cancer surveillance data can be used to answer pathology-related research questions with findings having the potential to impact patient care. Databases include tumor characteristics and biomarkers, stage at diagnosis, case demographics, treatment information, and disease outcomes. In this webinar, speakers from the National Cancer Institute (NCI) and the Centers for Disease Control and Prevention (CDC) will present information about available data resources covering the US population and North America as well as the National Childhood Cancer Registry (NCCR). For each resource, attendees will learn about publicly available data visualization tools and how to gain access to the data for their own research.

    Presenters:
    Alison Van Dyke, MD, PhD, FCAP
    Surveillance Research Program
    Division of Cancer Control and Population Sciences
    National Cancer Institute/National Institutes of Health

    Virginia Senkomago, PhD, MPH
    Cancer Surveillance Branch
    Division of Cancer Prevention and Control
    Centers for Disease Control and Prevention (CDC)

    Johanna Goderre, MPH
    Health Data Scientist
    Surveillance Research Program
    National Cancer Institute

  • Transforming Cancer Registry Data: Unlock the potential of CAP Cancer Protocols for enhanced completeness and quality

    January 18, 2024
    2:00 PM CT

    Cancer pathology reports provide critical data for central cancer registries on cancer cases diagnosed using laboratory testing of specimens obtained from patients. Over 90% of cancer patients will receive a diagnosis of cancer based on the pathologist interpretation of the laboratory test. Historically, pathology reports have been full text-based reports that are not easily processed and analyzed. With the development and implementation of the College of American Pathologists' electronic Cancer Protocols (eCP), the critical data needed for patient care and research have been structured to ensure more complete, timely, and accurate data. This session will review challenges observed due to improper implementation of the eCP and discuss the impact properly implemented eCP will have on the completeness, timeliness, and quality of cancer registry data. The California Cancer Registry will review their experience with receipt of eCP-structured data to enable more real-time case reporting that can be used to guide patient care, develop prevention programs, and provide cancer registry data to researchers and pathologists to better direct their work.

    Presenters:
    Mary Edgerton, MD, PhD, FCAP
    Pathologist and Informatician
    University of Nebraska

    Sandy Jones
    Public Health Advisor (Informatics)
    Informatics, Data Science, and Applications Team
    National Program of Cancer Registries (NPCR)
    Centers for Disease Control and Prevention (CDC)

    Jeremy Pine
    Information Technology Section Chief
    California Cancer Registry
    Chronic Disease Surveillance and Research Branch
    California Department of Public Health

    Reda J. Wilson, MPH, CTR
    Epidemiologist, National Program of Cancer Registries
    Cancer Surveillance Branch
    Division of Cancer Prevention and Control Centers for Disease Control and Prevention (CDC)

  • Finding, Organizing, and Using CAP eCP Data to Accelerate Cancer Research

    March 21, 2024
    2:00 PM CT

    The Northwestern University Research Analytics has gone through a journey to leverage CAP eCP data. The journey has consisted of finding how CAP eCP data is stored in Epic Beaker, and optimizing its use by building an extension data model and ETL that represents discrete synoptic data in a simple entity attribute value (EAV) structure. This foundational work has enabled Research Analytics to incorporate CAP eCP data into multiple research analytic use cases. Research Analytics is now able to deliver analytic data sets that were only been obtainable in the past via manual chart abstraction or NLP extraction. The use cases that will be covered:

    • Facilitating clinical trial recruitment: Many of the fundamental oncology data points that are essential in matching patients to clinical trial eligibility criteria can be sourced from discrete synoptic pathology data. NM Research Analytics has incorporated the querying of discrete synoptic pathology data into its delivery of clinical trial recruitment reports.
    • Clinical Specimen Archive Annotation: Many of the attributes requested by investigators for identifying cohorts of patients with clinical specimens residing in the NM clinical specimen archive can be sourced from discrete synoptic pathology data. NM Research Analytics has incorporated the querying of discrete synoptic pathology data into its delivery of accession numbers for submission to the NM Clinical Specimen Release Committee.
    • Automating Imports into REDCap Data Repositories: Many of the attributes that are manually abstracted by data coordinators for input into REDCap data repositories (for example, SPORE data repositories) can be sourced from discrete synoptic pathology data.

    Presenters:
    Michael Gurley, BA
    Administrative Director of Cancer Informatics
    Robert H. Lurie Comprehensive Cancer Center of Northwestern University

    Bhadrappa Molgi, BSc
    Data Engineer
    Northwestern Medicine

    Neelima Katam, MS
    Research Data Analyst Senior
    Robert H. Lurie Comprehensive Cancer Center of Northwestern University

    Giorgio Di Salvo, MS
    Research Data Analyst Senior
    Robert H. Lurie Comprehensive Cancer Center of Northwestern University

  • To Be Announced

    May 16, 2024
    2:00 PM CT

  • To Be Announced

    July 18, 2024
    2:00 PM CT

  • To Be Announced

    September 19, 2024
    2:00 PM CT

Topics will be released as they become available.

Registration Information

Even better, there is no fee for these webinars. Your registration (required) will enroll you in all six live Cancer Data Champion webinars, held from November 2023 through September 2024. Each live broadcast will also include a Question-and-Answer session with the presenter(s), and the recordings will be available on-demand.

You will receive a reminder for each upcoming session with a dedicated link to access the live broadcast.

Follow @pathologists on X using the hashtag #PathData for additional information and to find Q&A that might not be covered during the webinars due to time constraints.